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Saturday, January 23, 2010

General MS-Naivity in Commerce

One of the treatments I elected to persue to increase my chances of staving-off the progression of M.S. is Bayer's Betaseron(tm) .

Betaseron (beta interferon 1-B) requires a once-every-other-day subcutanious (under the skin, but not INTO a vein) injection.

The problem is getting people to realize that I CAN'T just go to the store to get disposal-supplies for the syringes that MUST be packaged in approved Biohazard-Labelled containers for disposal at an state-approved waste disposal-site, and therefore requires a ready-supply of those containers (known as sharps-containers)

Formerly I was able to purchase these containers online and have them shipped by-mail directly to my place-of-residence.

But the online store that formerly stocked such Biohazard-Safe collection-containers to store the spent-syringes safely while waiting for transportation to the disposal facility--no longer sells this product online...the solution offered by the online-store's client relations dept is something along the lines of "drive to X-location and buy them at the store, dumbass."

Well, unfortunately the logistics of getting to the store when you are partially-blind AND must walk with a cane are beyond the clerk's understanding...so I can't even respond to the clerk's naive-sounding email.

Which leads me to the subject of M.S.-Naivity...most people's only experience with M.S. is by rare communication with M.S.-sufferers (there are only about 2-3 million people in this whole world of 6 billion people with M.S.).

Anyway, it's clearly rare enough so that many folks assume that its "just like any other medical-condition espoused-by-hypochondriacs"...and NOT worthy of their attention. But the list of REAL challenges associated with M.S. is too long to enunciate to EVERYONE.

The bottom-line here is that I formerly was able to purchase these BD sharps-containers online and have them shipped to my home, but NOW I must arrange for someone to go to the store and buy them for me...FAT CHANCE.

How can the world possibly understand the conundrum of having syringes supplied, while simultaneously being required to dispose of them safely, and NOT being able to easily buy the very containers to safely store the spent syringes in the interim before ACTUAL DISPOSAL?

--mattergy

ADDENDUM 8AM PST
Of course, Bayer offers FREE sharps-containers with it's medicine, the conundrum was partially created...inadvertently... BY ME ...

I COULD HAVE received all the containers I needed from Bayer and it's agents...except that I was fully anticipating the continued availability of the product at the online-store with which I ALREADY HAVE AN ACCOUNT!

2 Comments:

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At Tuesday, April 06, 2010, Blogger mattergy said...

You're SO barking up the wrong tree you automated blog-reply-engine.

 

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